Tag Archives: Post Concussion Syndrome

The 504 Plan: School Accommodations and Protections for Your Concussed Student Athlete

By Alicia Jensen

After student athletes suffer a concussion, the first thing that pops into their heads is, “When can I play again?” What many might not realize at first is that the effects of concussions are way more than just physical in nature. Concussions mentally and cognitively impair that athlete either along with the physical symptoms or even after they have been cleared to go back on the field.

Many student athletes like me who are diagnosed with Post-Concussion Syndrome may notice some cognitive symptoms as they return back to school. Symptoms such as memory loss, confusion, a short attention span, and the terrible list goes on and on. Continue reading

A Rising Tide Floats All Boats; A Falling Tide Drops Them All On The Rocks

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We’ve all taken our eyes off the ball

By: Jay Fraga

While the sports world stands trivially transfixed with Richard Sherman’s NFC Championship post-game interview, lawyers on both sides of the recently-denied-for-preliminary-approval NFL Concussion Settlement scurry around in relative obscurity. With the sheer outrage mustered toward Sherman’s antics, one would think that America’s Game is being threatened. Once again, we’re proving as a nation that we are easily distracted.

America’s Game IS being threatened- but it’s not being threatened by Richard Sherman’s interview decorum. America’s Game is being threatened by a sub-par settlement, chiseled out by the bean counters and face savers at the NFL as well as a handful of plaintiff attorneys, who will take a sizeable sum of the bounty for their own coffers rather than forward it to deserving players. Worse yet, the settlement is based on troublesome language that calls to question just which players might qualify for medical benefits under it (for more detail on that, Patrick Hruby’s January 14th article is good reading). Continue reading

Press Release: 2008 US Olympic Bronze Medalist and Three Time World Champion BMX Racer Donny “dR” Robinson Joins The Knockout Project’s Board of Directors

FOR IMMEDIATE RELEASE:

2008 US OLYMPIC BRONZE MEDALIST AND THREE TIME WORLD CHAMPION BMX RACER DONNY “dR” ROBINSON JOINS THE KNOCKOUT PROJECT’S BOARD OF DIRECTORS.

Belchertown, Massachusetts – January 17, 2013- The concussion education initiative, “The Knockout Project”, announced today the appointment of Donny Robinson to its board, the “KO Roundtable”.

Robinson, the 2008 Beijing Olympic Bronze Medalist in BMX Racing, brings valuable experience, knowledge, and reflection to the table in terms of concussive history. Robinson has suffered over twenty concussions in his two decades worth of racing. Recently, Donny has been speaking out to racers and parents about a subject that he never really thought twice about; while trying to convey the serious nature of identifying concussions, sitting out until healed, and seeking a doctor’s advice before returning to action. Continue reading

Multiple Concussions and Multiple Missed Chances Highlight NJ Soccer Player’s Story

{Editor’s note: Wow, where do I start with this story? It’s wince-worthy from almost the word “go”. I guess there are some things that stand out to me: There just isn’t enough oversight when it comes to recreational (ie: non- HS sanctioned) sports. Far too few of our kids are overseen by qualified Athletic Trainers. Somehow, we must increase awareness of injuries that athletes are suffering in these settings. That comes down to parents and coaches being more aware, since the odds are against our kids speaking up when they need to. Frankly, Haley never should have been allowed to play anything in short order the way that she was able to. Not speaking up and playing hurt took contact sports away from her- there is no doubt about it. Had Haley spoken up, been adequately treated, had time to heal, and observed a legitimate return to play protocol, the chances are much better that she would still be playing sports right now. That’s a tough lesson to learn. Hopefully, someone in a similar position will read her story and think twice about being vocal that they’ve been injured. Playing hurt for just one game can absolutely take the rest of them away from you forever, as Haley’s story clearly shows. –Jay}

By Haley Mahony

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As I jumped up to head the ball, I knew exactly what the consequences would be. But, I did it anyway, as I had done many times. Before my first concussion, I knew nothing about concussions. Concussion was just a word in the dictionary to me. I didn’t think that something could be so serious and change my life forever in many ways.

I got my first concussion my freshman year of high school in September of 2011. On that Monday morning, I was brushing my teeth and getting ready for school. As I went to spit my toothpaste out, I sneezed and hit my head on the faucet. Everyone laughs at the story. I guess it’s a funny story, but it changed my life forever. When I tell people, they tell me that I should make up a different story and pretend that it never happened. At the time, I was playing on the freshman high school soccer team and the concussion forced me to sit. Continue reading

A Wife Opens Up About Living With Someone With Post-Concussion Syndrome

{ Editor’s note: My finger lingered for a while before hitting the “post” button on this piece. It did so, because it’s painful. It was written by my Wife, who I love very much. The physical pain of this fight is equally rivaled by the knowledge that your family is hurting along with you, and that you’re responsible for putting yourself and them in this position. It’s not easy to come to terms with that. But, if we’re truly going to be educational about the aftermath of concussion and ignoring your injuries, then this has to be spoken about. – Jay }

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By Jessica

I can’t focus today. I have to grade eight more papers and a week’s worth of discussion posts. Yet, here I sit staring at my macbook hoping that it will just magically happen. I’m sitting in my favorite coffee and tea café listening to the chatter of others and the espresso machine. It’s relaxing. I don’t have to worry about anything (other than the fact I’m not getting any work done).

Every day, I wake up with a knot in my shoulders. I’m stressed out before I even leave my bed. I bring a lot of the stress on. I try to do too much. I try to make others happy while often giving up my own simple pleasures (I really want a f’n latte right now but I’m sipping black tea with no sugar). Continue reading

Long Island HS Junior Speaks About Loss, and Perseverance in the Wake of PCS

By Kate Gaglias

kategThe saying “You will never know the value of a moment until it becomes a memory” is absolutely true. Many of us athletes take our sports for granted- The grueling practices, running laps for no reason, constant games and tournaments. But the truth is no matter how much we say we hate it we will always have the love for the sport. Until, unfortunately for some of us all of that can be taken away in an instant.

My name is Kate Gaglias, and I am a junior in High school in Long Island, New York. I’ve played soccer since I was four years old, beginning in an in-house league like every other toddler. I joined a travel team when I was eight called the Longwood Twisters (which I am still a part of today) and played on the junior high team, JV team, and in my sophomore year I became a member of our varsity team. But since a young age my life has been changed by concussions. I received my first concussion in 2007 by getting a ball slammed to the side of my head by one of my teammates at an indoor practice. I didn’t feel anything until I got home, and after telling my dad (an athletic trainer) and my mom (a physical therapist assistant), they checked out my symptoms (the normal dizziness, sensitivity to light, headaches) and they all added up to having a mild concussion. I was out of school for a week, and when my symptoms were gone I returned to school like a normal 5th grader. Continue reading

Illinois HS Senior Hoops Player Speaks About Life After Concussion

By Mikaela Broling

securedownload-225x3001Everyone has a story: Enlightening stories, depressing stories and even stories of faith. Each and every one of them have deep feelings and memories attached to it. In reality, they are all different, whether it be how theirs started or ended. I have not always been so keen on sharing mine, but I have come to learn that it is a very important one, one that will make people think, wonder how I keep going, but most of all it is a story of my strong faith and lets people know there is always a light at the end of the tunnel. It may not seem relatable, but look in between the lines, everyone has been lost at some point in their life, broken, fearing what is to come next. I have learned to surpass that, and share with people how it is even possible to overcome those obstacles.

My story began the evening of January 24th, 2012. I was a 15 year old girl, who loved  sports! I was a 3 sport athlete, with a total love for  playing soccer! However, on the night of the 24th I was playing a basketball game. That very unpredictable night. I was one of the most aggressive defensive players my team had, and I gave nothing short of my best every time I went out on the court! The team we were playing that night, was a very rough team. Physically and mentally. As the game goes on into the evening, the score board goes back and forth between both teams. After scoring a shot, the score board was now in our favor, and we had to get back on defense. I was in charge of marking their point guard, who had very quick feet and intentionally set me up for the biggest fall of my life. Running to keep up with this crazy fast girl, not aware of where I was headed, I ran straight into a massive post player. I ran right into her shoulder, she was much taller than me and my right temple slammed into her shoulder. After that hit, I freefell to the hard gym floor, it was the back of my head that hit hard against the gym floor.  I’m told it  was the kind of hit that silenced the gym.

Dazed and confused, I tried getting myself up off the gym floor. Miraculously, I did not go unconscious. Eventually my coach ran out to help me off the floor and to the bench. I went into a little panic attack on the bench, because I was so confused. Knowing something was wrong with me, I tried to stay calm. Surprisingly, the trainer at the gym dismissed me as nothing was wrong, just a bump on the head and to go home and sleep it off. No concussion, nothing. My mom on the other hand, was not going to settle that easy, so off to the emergency room we went. I remember feeling so tired and more worn out than usual, and just uneasy with my surroundings in the ER waiting room. Once admitted, the ER doctor came in for the evaluation, and sure enough I was diagnosed with a concussion and told I will deal with post concussive syndrome over the next few weeks or months.  I was told school would most likely become a bit difficult. That night we did not realize the severity of this hit, only the next few mornings would start to bring answers.

My dad was gone on a business trip that week, so my mom and siblings were home with me. In the morning when I woke up, I was in my moms bed with her, rather confused and very quiet. I remember seeing my mom first thing when I woke up, and asking her why I was in bed with her. She said I had a rough night, and thought it was best that I slept in her bed with her.  That day I slept pretty much the whole day and night. My mom said I wouldn’t eat and really didn’t want much to drink.  The next morning I awoke in my mom and dads bed again. My mom just sat next to me talking just a bit to me.  There was a phone laying next to me by the bed in the morning, so I was looking through it, and scrolling through pictures. I was looking at all these faces, they had no names to me. They were all strangers to me. My cousins, friends, boyfriend and even family.. I did not know them or understand why.  I think my mom was just as confused as me. We went through all the pictures together, and none of them rang a bell. This realization was the first of many to come.

Throughout the week, more and more things came about that I did not remember. My recollection of colors, food, geography, family members, friends, animals, places, my past, holidays, seasons, even my own boyfriend. All of those were lost in my head somewhere. My short term memory was horrible, and my long term memory seemed to have went completely missing. Another unusual thing that happened was that I became completely literal. I did not understand the concept of joking, innuendos or sarcasm. Also, cartoon characters and animated shows or movies tended to scare me. I really thought that all of those things were real. Still today, when I become tired, I am more apt to be quite literal and skittish around animation. The most difficult thing though was not knowing who my Dad was.  He  had been gone on a business trip and when he came back I just had no idea who he was. When he started crying, I could not help but to cry either. I mean, after all, I was not sure what I was crying about anyway . He kept reassuring me, and said that all will be ok and I would heal.  As scared as I was, I just kept trucking along.

A week after my accident, I went in to get an MRI. I had a CAT scan in the ER, which both turned out to be normal. My head injury has stumped my doctors and neurologists, as well as, my Neuropsychologists. They say they have never seen a case like this before with so much memory loss . I went on with my regular life as much as I could. I stayed home for a few days from school until I thought I was ready to go back. We did not realize the fatigue I had until I tried going back to school. My school was very understanding with me when it came time to go back. I was on half days of school for the rest of my sophomore year and  3/4 of my junior year of high school. Now a senior, I am able to go full days. I am on a 504 plan, which enables me to get accommodations with school work and tests and gives me extra time on any assignments I need. For about 4 weeks, I knew nobody’s names at school. No teachers, friends, classmates, nobody! My boyfriend, Adam, was the one who helped me with everyone’s names and helped me find my classes. I had to re-meet him several times in order to remember who he was. To this day, he still shares many memories with me that I do not have.

For 6 months to a year after my concussion, I battled  headaches and sometimes dizziness.  When I am tired, I  still struggle with lights and noise. I also have a difficult time now with crowds. The fatigue I have is  like no other fatigue I have experienced before and still struggle with it daily. Naps were a normal thing to me, and they still are. After school, I would snuggle up in bed and sleep for 4 hours when I did half days. Now that I am consistently going full days, every so often I take a day off of school to catch up on my sleep.

As of right now, I am going through neuro feedback, and seeing if it will in fact help my fatigue. I have been resting and going along with my normal life as much as possible.  I  am still getting some memory back here and there. I am hoping to get back my energy like I had before, but I also know that coming out of a traumatic brain injury like this, I will certainly not be the same girl as before. No one could possibly be the same as before. I would say all of the colors, food, animals, geography, people, etc. that I have come to know in these past 21 months, has all been taught to me, or I have learned on my own. As of right now I am still learning these things, I  definitely forget a lot of these common topics, but  I am trying to learn them still. I am not about to give up on my struggle though. I really do love life! There have definitely been times where I could have easily given up, but my faith in the Lord and in myself, along with the love from my family and  boyfriend Adam has kept me on my feet. I have learned not to be embarrassed when I make remarks, or do not understand something, because God has a plan for me. God has a special plan for each and every injured mind.  I Know His plan is an amazing one.  In the book of Jeremiah it says, “Heal me, O LORD, and I will be healed; save me and I will be saved, for you are the one I praise”(17:14). This is why I keep going, this is why my experience will be shaped into a story of faith and encouragement for others and also myself. There is always light when things seem dark.

Multiple Concussion Sufferer From PA Details Her Experiences

{ Editor’s note: Isabella’s experience highlights the most common (and nerve-wracking) bullet point that many of us have learned as multiple concussion sufferers: That it takes virtually no effort at all to re-injure yourself once you get the ball rolling with concussions. We know that the effects of concussions are cumulative and that each one increases the likelihood of the next one- even from a slight bump. Living under that sort of cloud day to day is stressful and very difficult; especially, as you are working hard to recover from current symptoms.   – Jay }

By Isabella Cantafio

isabellaI never knew what a concussion was until I got my first one in a soccer game in 6th grade. I headed the ball in the air with another player and fell back whipping my head off the ground. I remember feeling in a blur and sat out for about 5 minutes before returning into play. By the end of the game my head felt like someone was hitting it with a hammer and I was on a merry go round ride. My next concussion came in 8th grade from hitting my head off the gymnasium floor leaving me unconscious for 2 minutes and sending me to the hospital.

Nearing the end of my freshman year, I was in a water park accident that caused a concussion and forced me to end my 9th grade year early.

A few weeks after the accident (never being officially cleared by IMPACT test) I was playing soccer with some friends and got kicked in the head causing another concussion.

Over the summer until the start of my sophomore year I had intermittent headaches, got easily dizzy and overall didn’t feel right. I didn’t think it was from the concussion but when school started I found it hard to concentrate, my grades started slipping and the headaches just got worse.

Two months into the school year, I passed out, hitting my head and was unconscious for almost a half an hour spending 3 days in the hospital under observation for seizure activity. After the accident, I had double/ blurry vision for several months, fainting spells, problems in school, and severe migraines that seemed to never leave.

Doing vision and vestibular therapy for 5 months things started to improve until fooling around with some friends I got pushed back jarring my head causing many of my symptoms to come roaring back.

I was forced to end my sophomore year early bed bound for 5 months unable to watch tv, text or do anything that would stimulate my brain. It was horrible to say the least.

Playing basketball my junior year I got hit in the head causing another concussion.

A few months after that, I got a knee to the head and blacked out for several seconds. Not much force was needed to knock me out at this point. The summer leading to my senior year I had moderate improvements in my post-concussion symptoms and was really looking forward to senior year and looking into college.

Just when everything started improving, things spiraled downward quickly, and I got back to back concussions, 2 weeks apart. The latter of the two was a car accident that caused a neck injury and more concussion problems. I’ve been in and out of the hospital trying to get the migraines under control, doing more vision and vestibular therapy and cognitive exercises to help with short term memory problems and concentration issues, sleeping problems and mood swings.

The one thing out of my experience I have learned is to never take anything for granted. You may think you are “invincible” and you can play through any pain. But with concussions it is your brain, something you can’t replace, you need to take care of it.

No game is worth years or possibly a lifetime of problems. I can never play sports again, I still have many problems from my injuries and my college plans are on hold for now. But sometimes in life the road that everyone else is taking, isn’t the road you are supposed to be on.

Take every day one day at a time and never give up!

 

BMX Racer From California Speaks Out on the Effect Concussion Has Had on Her Life

{ Editor’s note: I first became aware of Sara the night that she crashed racing in Oregon. I got a message from a concerned mutual friend (a Nationally #1 Ranked BMX Racing mutual friend, at that) saying, “Hey, she popped up online and doesn’t sound real good- you should try to get in touch with her right away and encourage her to get checked out/rest/etc.” –  which I did right away. Despite that, Sara is now writing her story for us and has unfortunately become “one of us”.  – Jay }

By Sara Dooley

saraApril 14, 2013. This is the date I will always remember, my life now separated out to “before” and “after.”  If you lose a limb, the disability is tangible to the general population but when it is internal, people chose not to believe. It was the Sunday main even at the Great Northwest Nationals. I had gate 4, my favorite, and knew I had it in the bag to podium.  The gate dropped and off we went, Girls 36-40 Cruiser class. The riders to my left and right were trying to sandwich me in, and I was not giving up my line. I never saw the rider from the outside cut over to the inside until it was too late. I hit her back tire as she passed and off I went, head first into the dirt. About 2-3 hours later is when my memory came back. While I did not pass out, I did have amnesia. My memory came back when the arena was clear and the vendors were taking down their areas. No matter how hard I try, that time is not coming back to me.

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Sara: Out Front in Oregon

After much pushing and prodding from my friends, I went to the Emergency Room that night. It seems I had broken my helmet where I hit and they were concerned there could be bleeding on the brain. The Doctor ordered a brain scan and thankfully there was no bleeding. They referred me to see my Doctor as soon as I made it back home and explained the severity of a concussion.The next morning I made the 12 hour drive home. Little did I know that my life had transformed.

After seeing my primary Doctor I was put in “isolation” as I call it for a week. No work, phone, TV,  lights, loud noises, or reading-just sleep. I thought this would be hard, but with my head hurting so bad, I wasn’t complaining. I literally slept for a week and then went back to work. This is when I realized something wasn’t right. I had a hard time concentrating, jobs that I could breeze through prior, were now difficult. The more I thought of how to process something, the more my head hurt. I still had a black eye and part of my head was bruised so people understood. Also, the injury was “new” so it was understandable and they accommodated the injured me.

As time went by and the bruising healed, my productivity reached the normal level, my personality came back (for the most part) people expected me to be back 100%. What they didn’t/don’t understand is I am not. It has been almost 4 months since my accident. I have to sleep more than most. Everything I do-no matter how simple, tires me out. Most just a little, but sometimes it takes me a week or more to recover. My brain is fried and sleep is the way it heals. It is like being drugged, no caffeine or anything will keep me from having to sleep. People don’t understand that sometime just a day at work wears me out, or spending the day at the track. Simple things that now leave me needing a day worth of sleep to get back to the new normal. My body can no longer regulate heat like it should. I have to use the air conditioning or drink gallons of ice water if I am going to be in higher temperatures. I have a hard time concentrating. I forget words and how to do things I have always known how to do. I have what I call “the wall” when I am trying to explain something. I can see it-and then the wall comes up and I cannot put it into words. The ability is just not there anymore. If I am tired I slur my words, or have a hard time pronouncing them. I can’t handle bright or flashing lights, they are a circuit overload and short out my brain and stop the ability to think in a logical way. I can’t track fast movement, like in action movies. If the music is too loud, it makes my head hurt. I used to listen to my headphones daily at work, but now I have a hard time listening to music and working at the same time. It feels as though it is too much for my brain to process at once. While these all may seem minor issues, they were not how I was before the accident, and people don’t understand there is a valid reason I cant explain something, can’t remember how to do something simple.

In response to my new shortcomings, people sigh, they roll their eyes, they tell me to knock it off. I’m to the point where I don’t explain anymore, I just apologize-for not being the person I was. This is never something someone should have to do. I find I don’t go out much, beyond the obvious of loud music and bright lights I just don’t want to have to explain myself or why I need to go home early because it was too much. I avoid conversations because I know I am lousy at participating if they become detailed. It has changed my life and trying to accept that, and learn how to live with the changes is hard. Every time I go to the Doctors they move my recovery date. It started out as 1-2 months, then 2-3, and now 6-12. They say what hasn’t come back or healed by the 12 month mark is most likely going to be permanent. They want me to accept this and be prepared for it. Every day I think of what might stay and what may heal-which I think I can live with more than others. I wish I didn’t have to think this way. I wish I could express myself and gain understanding from others, not impatience. But again, I look normal…so how can anything be wrong?

 

Jay Fraga Interview With Mike Carruth of BMX News

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On Tuesday, July 23, Mike Carruth of BMX News spoke with Jay Fraga about concussions in sports and why Jay started The Knockout Project. You can download or stream the interview here:

http://www.blogtalkradio.com/bmxnews/2013/07/24/bmx-news-announcers-tower-live–july-23-2013-1