Category Archives: Parents

PCS: A Parents’ Perspective

{Editor’s note: In 2012, I was contacted by a then-sophomore in high school who was having trouble dealing with the rigors of PCS on top of trying to be a student. She asked me to help her work through things. What came out of that has been a wonderful friendship with a very resilient girl who is now a freshman in college and who still soldiers through some absolutely incredible symptoms. She always tells me how tough I am, but I think she’s tougher. It has also earned me a director on our board in the form of that very resilient girl. Who better to help me guide the trajectory of The Knockout Project? I am thankful that Alicia has such great parents who will go to such lengths in her search for good health.  –Jay}

jensensFrom left: Mike and Joy Jensen with their children Mike, Alicia, Sean, Ashley, and Matthew

By Mike Jensen

As any parent would agree, the most difficult and stressful job you could ever have is raising a child.  You take all of your experiences that you learned in life, and use them to guide and teach your children to meet the challenges that life will throw at them, and hopefully they can build a better life for themselves and future generations.  But, there is one thing you can never prepare for.  That is if your child is sick or injured.  When Alicia got her concussion in April 2012, I was concerned, but, with the little experience I had with concussions, I didn’t know what to expect.  When I was in youth sports, if someone got hit in the head, or, as we used to call it “got his bell rung”, it was no big deal.  Even if the word concussion was mentioned, the consensus for getting better was a few days rest.

I learned a lot since April 2012.  Alicia was 15 at the time, been playing soccer since she was 6, never got too badly hurt.  Not even a minor injury would set her back too far.  On this day, she was defending a play when the opposing player attempted to kick the ball down into the offensive when it struck the side of Alicia’s head.  She went down, got right up, slowly, and said she was fine.  That was right at the end of the half, so there was no real question of removing her form the game, the half was over.  After half time, she felt OK, went back out, and right at the end of the game, she got hit again.  Hit twice the same way in the same game.  After 10 years of soccer, she played her last game, and has had a debilitating headache ever since. Continue reading

Joanne Stankos, Mother of Twelve Year Old Taekwondo Black Belt Jaden, Tells “Jaden’s Story”

{Editor’s note: This piece speaks for itself, but I just wanted to mention how proud I am of Jaden and his family for the work they are doing during their journey. Jaden, you’re an impressive young man and a true warrior. I hope that I get a chance to meet you and your Mom at some point! –Jay}

By Joanne Stankos

newjaden

This is Jaden’s story.  His story of living with Post Concussion Syndrome.  He would write this on his own if he could, but he can’t.  His story is like so many other suffering with PCS.  But his takes a slightly different turn.  But I am getting ahead of myself here.  I am his mom.  I hope I do him justice by telling his story.  He will definitely let me know.

July 2, 2013.  That is when Jaden’s life changed.  I can still hear the deafening sound of the arena going silent when it happened.  It was the only time I have cried immediately upon seeing Jaden get kicked.  I knew that this time was different.  Little did I know how different.   We had just entered into the world of PCS. Continue reading